MS Talk through the eyes of a believer!

I’ve had a cold for about 2-3 weeks. My legs feel heavy. It feels like a force against gravity putting one foot in front of the other trying to walk. I feel like I have what can be called the “Man Cold.” I’m coughing, sniffling, sneezing, and wheezing with a congested chest. With MS the medication of my choice suppresses my immune system which caused me to reschedule my next treatment. Through God’s grace the cold will be gone before my appointment.   If I go too long without getting the MS treatment my body starts to do its own thing. Rest, fluids, vitamins, and food helps the MS cold; however I do not have an appetite so I eat little or nothing. Feeling this way really concerns me because with the symptoms could come an elevated body temperature which can lead to a pseudoexacerbation. Pseudoexacerbations of MS are flare-ups and is not a worsening of the disease. The Lord sustains them on their sickbed and restores them from their bed of illness.” Psalm 41:3 ...

I long for 1 day to feel normal. I want to go walking  without support.  I want to go shopping. I want to go to the beach. I want to go to the park. I want to go on a trip. I want my house clean. I'm not complaining because I'm grateful for the grace that God has shown me "Do all things without complaining and disputing, that you may become blameless and harmless, children of God without fault in the midst of a crooked and perverse generation, among whom you shine as lights in the world." Philippians 2:14-15 I'm not sure what normalcy is but it has to be better than life with a MS diagnosis. My activity is becoming very limited. I stay medicated to alleviate the pain which allows me to move around more.

Sitting here looking back over my life brings tears to my eyes to see God working in my life.   The Lord is good to me.   He went as far as giving His only Son .   “For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.”   John 3:16 Thank you, Jesus for waking me up this morning, putting food in my kitchen and clothes on my back. You are good to me.   I thank You for the good & bad times including MS because all of it is making, molding and shaping me into the woman that You created me to be. Lord, You are good to me. MS is a nasty disease.   One of the good things is, I’m a better woman for it.   I feel more ameliorated then yesterday with strength to make it through the day.   Lord, You are good to me. B ecause of MS, my ability to walk is becoming a struggle within itself and sometimes I try to lean on my own understanding to stay in control; howe...

I never seen anything like this before in my life. MS is the lonest, the most expensive, the most complicated and I can go on forever. I never experienced anything like this before.  Right now, I feel like I'm the only person in the world. I feel like nobody cares and if they do, well, they don't understand.  With MS, to not  understand or to not care is the same thing. Because with both, one can not relate to the MS patient.  Speaking personally, that is what anyone with a chronic disease need, someone to understand and have the ability to relate to the disease and all the obstacles that come with it. I think I'm overwhelmed.  Sometimes I think too much. However I saw a quote that said "Sun is alone too, but still shines." That made me smile and remember that God said, “In the same way, let your light shine before others, that they may see your good deeds and glorify your Father in heaven.” Matthew 5:16 Even though some don't understand or whatever t...

I don’t know if lack of appetite is an MS symptom but I experience it sporadically. I love to eat; that is what I do. Lately I have no desire to eat anything. Everything taste horrible. With not eating comes nausea. It’s like morning sickness when passed the child bearing age. I drink plenty of water and juice to avoid dehydration.   My husband tells me to try and force myself to eat; however if I do; everything will end up on the floor. If I don’t lose the food, but don’t eat it all, well, I don’t like left overs.   I don’t want to waste food so I don’t bother unless I know that I know.   Lately, I DON’T KNOW if I’ll eat it or not.   I might get it in my mouth but I can’t chew or swallow it. This is really becoming a problem for two reasons: I don’t like taking medication on an empty stomach and I’ll be the first to stand and say that when I don’t eat; I’m very moody. It’s kind of ironic because I can’t find any information on the subject.   This is ano...

I probably said this once but I started this blog and every other social media site because I want to talk  about MS. I want to read about MS.  I want to learn every thing I can about MS. I talk about it because I don't want anybody feeling alone and misunderstood. I say that because  MS isn't commonly discussed in the African American community. If MS isn't discussed, who do you talk to? Family and friends don't understand. Neighbors don't get it either. Can't talk about it on the job. Who do you run to?  Who do you talk to?  “Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time.   Cast all your anxiety on him because he cares for you.”   1st Peter 5:6-7  Again I say; disease is disease!  To not have any knowledge about a particular subject makes one ignorant to the fact. IGNORANT-lacking knowledge or awareness in general; uneducated or unsophisticated.   WHO DO YOU TALK TO? ...

Sometimes I get overwhelmed with the MS symptoms. At times, I am very forgetful.   I must write it down or otherwise I might forget. After a month, I remembered to return a call to a friend. Those types of things are becoming bothersome to me because I don’t want to appear stand offish. To be in my world, one must work with my strengths oppose to my weaknesses. “I can do all things through Christ who strengthens me” Philippians 4:13. G et on the MS roller coaster and ride.That’s what it is like to have a love one or friend with MS. ONE BIG RIDE!   I must say, buckle up, make sure your seat belt is on because some days the ride might be bumpy. You must be strong to take this ride.   If there are any signs of weakness, well, the MS ride may not be for you. Remember, you can always get off at the next stop. However those of us that have been assigned this journey must take the ride and it's better or should I say easier if we are not alone. In evaluation of it a...

I had a great time at lunch yesterday with a group of friends. I feel really blessed to be a part of a MS support group. There is a lot of wisdom in the room; along with good people.   It is an honor and privilege to talk to people that are traveling the same road that I'm on.   “Rise up; this matter is in your hands. We will support you, so take courage and do it.” Ezra 10:4  I was reading Healthline and 12 foods were listed for being high in vitamin B12. After looking at the list, my first thought was OMG.   I know I might have a deficiency because out of the items listed, I probably eat two things.   The foods are as follows: Organ meats, clams, sardines, beef, fortified cereal, tuna, fortified nutritional yeast, trout, salmon, fortified nondairy milk, eggs, milk & dairy products.                               BE BLESSED!

After a few years of the MS diagnoses, I’m unable to write.   If I do write, it is illegible. MS has affected my hands. To have the ability to blog is truly a blessing. Lord, I can’t live without You. I can’t talk without You.   I can’t walk without You. I can’t move without You, Lord. “Taste and see that the Lord is good; blessed is the one who takes refuge in him.”   Psalm 34:8  The Lord Jesus Christ showed up today at my house, well, He never really left.   Point being is, God confirmed two things for me: Isaiah 55:11 “so is my word that goes out from my mouth: It will not return to me empty, but will accomplish what I desire and achieve the purpose for which I sent it.” The second thing that God clearly stated is, “Do not be afraid; keep on speaking, do not be silent.” Acts 18:9  Shout out to “Multiple Sclerosis.net” for the publishing of my blog listed below entitled “Truth Is”   I was diagnosed with MS in 2015. I don’t always f...

I read this interesting article on  Everyday Health that made a good point about germs & assistive devices.   I don’t leave home without my cane and probably have dropped it a thousand times.   I found the article interesting because I never gave it much thought.   It’s ironic that I didn’t because with MS & the immune system being suppressed, I like everything clean.   I laugh at myself because I say that I must have the cleanest hands in town with perpetually washing my hands. I don’t touch public door knobs. That’s to name a couple of things; with most things one might say I’m over the top. Here is the kicker, I worked in a clinic. Work was a constant battle with cleanliness.  God says, “I will save those who love me and will protect those who acknowledge me as Lord. When they call to me, I will answer them; when they are in trouble, I will be with them. I will rescue them and honor them. I will reward them with long life; I will save them...